Wow. Right. Ok.
“Having high-grade pre-cancerous cells means that your chance of not being able to carry a child to full time has risen to 10% and this surgery won’t change that,” he continued.
“But, there’s a chance it will come back.”
“Each time you have the surgery, that percentage rises and as a young Sydney woman, I’m guessing you’re not planning on having a child anytime soon?”
I ferociously shook my head.
“So, what do you want to do?”
The thought that anyone would say no to surgery when the alternative was cervical cancer blew my mind.
“Let’s get cutting.”
When I’d had my (admittedly pretty late) first Pap smear at 21 I wasn’t worried at all.
I had regular periods and didn’t have any pain or irregular bleeding - the only reason I got one was because I finally had a female doctor so it wouldn’t feel awkward AF, and she told me everything looked fine.
When she called me a week later, I thought it was about the chlamydia test I’d gotten for kicks while she was down there so I was busy mentally prepping my fight with my boyfriend.
She told me I had some abnormal cells in my cervix, which didn’t sound that concerning, but she sounded really sympathetic and then asked me to come in for a chat - so I obviously instantly freaked out.
Not being from Sydney, the referral to Chris O’Brien’s Lifehouse meant nothing to me. It wasn’t until I was surrounded by brochures on how to deal with cancer that it started to click what abnormal cells meant.
“You have HPV,” the gynaeoncologist told me (see how much that looks like g-y-n-a-e-c-o-l-o-g-i-s-t? All the cancer references really went over my head).
“But don’t worry; for the majority of people, the body’s defences are enough to clear up the virus and this will probably sort itself out.”
In fact, the Department of Health estimates that up to four out of five Australians will have an HPV infection at some point in their lives, and due to the asymptomatic nature of the virus, many never even know.
Mine, however, didn’t sort itself out, and after some fake negatives I was being told cervical cancer was on the horizon at 21.
As of December 1st this year, there will be drastic changes to the current Pap smears.
The current two yearly Pap smear will change to a five yearly HPV test and a petition did the rounds on Facebook which made this change seem really scary.
But it's not - the reason for the change is because while pap smears detect abnormal cell changes, the new test detects the presence of viral DNA at the molecular level which is the cause of almost all cervical cancers.
The new test undeniably has a lot of benefits, including its superiority at detecting HPV related cancers.
“There are 2 main types of HPV related cancer – squamous cell carcinoma and adenocarcinoma,” explains Dr Jane Williams, researcher at the Centre for Values, Ethics, and the Law in Medicine at the University of Sydney. “Paps are more effective at picking up the former but not great on the latter. HPV testing is more likely to pick up both.”
Pre-cancerous cells are ridiculously common.
When I discussed having pre-cancerous cells, I was amazed at how many women in my life had experienced the same thing – it was overwhelmingly common. That’s why when I saw the age for the new HPV test had been raised to 25, I was horrified.
If I’d waited until I was 25 to have the test, I could already have cancer...right?
But that’s where Dr Williams, and a lot of other medical professionals, disagree. She thinks the term ‘pre-cancer’ is both inaccurate and counter-productive.
“Most detected abnormalities would never have turned into cancer – and I think that word is a big part of why women think having their abnormal cells removed at 21 has saved their lives,” she argues.
In fact, a study in the British Journal of Cancer found countries where screening starts at 20 did not have significantly different rates of cervical cancer to those that began screening at 25 and extensive research has proven that the ‘better safe than sorry’ approach of some doctors has resulted in high rates of unnecessary surgery, which has the potential to result in problems with pregnancies.
“Many of those abnormalities [CIN] will regress by themselves without any intervention,” explains Professor Karen Canfell, Director of the Cancer Research Division. “It’s also a very long time period between CIN and the possibility of invasive cancer.”
In fact, it’s about 10 – 15 years on average with only about 25% of high-grade CIN cells going on to form cancer - but that isn’t always the case.
A 25-year-old British woman died earlier this year after being diagnosed with cervical cancer at 21.
However, Amber Rose Cliff’s family says she began exhibiting symptoms at 18 but she was refused screening by her GP numerous times because “she was too young”.
The NHS only offers screening to those 25 and over.
"If Amber had a smear test sooner then the cancer might have been caught in time, and we wouldn't have lost her like this," her brother said at the time.
Australian medical professionals have been careful to stress that a woman presenting symptoms at any age can be tested by her GP or gynaecologist.
In the recently released guidelines, exceptions to the age of first screening have been outlined.
“If women started having sex before the age of 14, before they were vaccinated or have been victims of child abuse they may be offered a screening test between 20 and 24 years of age” Dr Deborah Bateson, Medical Director of Family Planning NSW explained.
Regardless of your age, it’s so, so important to know the symptoms of cervical cancer.
If you know that something's wrong you can press your GP even if they insist it's nothing.
The symptoms include:
• Bleeding After Sex
• Heavy or longer periods
• Back Pain
• Foul-Smelling Discharge
• Pain or discomfort in the pelvis or during sex
• Difficulty With Bowel Movements
• Leg Swelling, in conjunction with other symptoms
Know your body.
Look, I would consider myself to be pretty switched on in the sexual health department – shout out to my mum’s sex-ed talks at the dinner table from when I was about seven – but I had no idea that a Pap smear was a cancer screening test until I was sitting in an oncology clinic.
Talk to your friends, take away any taboo about openly discussing your health.
Until the HPV screening comes in, continue with your normal Pap smears and you'll be invited to the HPV program when it's time.
Last year, about 250 Australian females died from cervical cancer – a number which has been pretty consistent since the comparative data begins in 2006 - and that only counts for 1.2% of all female deaths by cancer that year.
But if any of your mums, sisters, aunts or friends are even one of those 250, then it doesn’t matter how low that percentage is – it’s still too high.
Know your body and stay safe, queens.